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GFCF Kids 

The GFCFDiet.com's Internet Support Group  GFCFKids 
Free & easy to join  http://health.groups.yahoo.com/group/gfcfkids/ 
The principle aim of this list is to provide a discussion forum for parents and caregivers of children on the autism spectrum who are avoiding gluten and casein and other substances in their children's diets. Discussions  include practical information and tips on following a GFCF(etc) diet; scientific research and opinion; the latest developments in understanding GFCF(etc) diet-related health problems;  personal stories and experiences with relation to GFCF(etc) problems; information on what food is GFCF(etc)and what is not; tips on how to eat out of the house; recipes and tips on how to cook and prepare GFCF(etc) food; what vitamins, minerals, herbs and other supplements may be appropriate for a child with autism, how to cope with difficult diet demands, plus support for parents and caregivers. Appropriate topics for discussion on the list include anything at all related to diet and autism spectrum disorders-including GFCF but also yeast, nitrates/nitrites, dyes, vitamins, minerals, supplements, dealing with teachers, friends, schools, outings, siblings, testing, etc. This group has a searchable database. 
Note:  Opinions expressed on this board are not always the opinions endorsed by The GFCF Diet Support Group. NO post on GFCFKids is  to be used as medical advice.

 

Support Groups in the United States

Note:  We have provided a list of support groups across the U.S. as a community service for those who implement special diets.
Discussions at group meetings may not always reflect opinions/protocol of  The GFCF Diet Support Group.  These are volunteer groups who generally are parents and  not always medical professionals.

Arkansas

Fayetteville, AR 
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact:  Melanie Faught
Fayetteville, AR  72704
(479)  582-9232 melaniefaught@cox.net

Alabama

Mobile, AL  36695
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact:
Marilyn Taylor
251-633
-3528 Taylor6211@bellsouth.net

Slocomb, AL
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: 
Nichole Alexander (334)-886-7150 mamma-hen3@hotmail.com 

Birmingham, AL
Typically meets the 3rd Saturday of each month
Time: 2:00 - 4:00 PM
Brookwood Baptist Church
3449 Overton Rd.
Birmingham, AL 35223
Unable to offer childcare at this time.
http://www.tacanow.org/local-chapters/southeast/alabama/

Arizona

Greater Phoenix, AZ
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact:

Elana Kutz
 phoenixceliackids@gmail.com,

Tucson, AZ 
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact:  Liz Attanasio  (520)- 877-9181
mailto:lizinbox@aol.com

Tucson, AZ  85750
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Shelli Hanks   (
520)-577-0774 TucsonROCK@comcast.net


California 

Campbell, CA 95008
Bay Area ROCK
Contacts:  Kelly Fowell Velez 
kellyvelez@comcast.net or 650-303-8409
and Debbie Duncan debbie@debbieduncan.com  or   (650)  494-6959
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 


Conejo Valley, CA
ROCK'n Conejo Valley
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Melissa Riches 818-706-0197  melissa.riches@sbcglobal.net


Danville, CA - Support Group
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Ann Reigelman  e-mail: areigelman@yahoo.com

El Dorado Hills (Sacramento), CA
- Support Group: 
Contact: Beth Kassis
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
E-mail: bethyk@pacbell.net


Inland Empire, CA
Typically meets the 3rd Saturday of each month
Location: Crossroads Christian Church
(in the London Institute Room)
2331 Kellogg Ave.
Corona, CA 92881
http://www.tacanow.org/local-chapters/west/california/inland-empire/

Irvine, CA
- Support Group:
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Evelyn Tribole
E-mail: ETzzzzzzzz@aol.com


Lake Balboa, CA Support Group
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Melissa Gray
Melissagray808@gmail.com 818-510-0534

La Mesa, CA - Support Group:
Contact: Amy Unger-Weiss
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
E-mail: Unger-Weiss@worldnet.att.net

Long Beach, CA

Date: Typically meets the 1st Saturday of each month
Time:
12:00 – 3:00 PM
Location:
Ability First
3770 East Willow Street
Long Beach, California 90815
Child care: This is not offered at this time, sorry.
http://www.tacanow.org/local-chapters/west/california/long-beach/


Los Angeles & San Fernando Valley, CA
Date: Typically meets the 1st or 2nd Sunday of each month
Location: The Congregational Church of the Chimes
14115 Magnolia Blvd.
Sherman Oaks, CA 91423
Childcare not offered at this time
http://www.tacanow.org/local-chapters/west/california/los-angeles-san-fernando-valley/

Los Angeles, CA
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Amy Harley – 818 – 249-2432   harleyhome@earthlink.net
Cheryl Cohen – 818 – 784-4516  cohencheryl@yahoo.com

Moreno Valley, CA 
Contact: Kellee Shearer (951) 242-8448
Treshearer@aol.com
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 

Pasadena, CA 
Parent's Dietary Support Group 
Meeting Place: Wild Oats in Pasadena (California/So.Lake) 
For more information contact host, Sally Stewart at pasmktmgr@wildoats.com

San Diego, CA
Date:
Typically meets the 4th Tuesday of each month
Time:6:30 – 8:30 PM
Location:
Rancho Bernardo Community Presbyterian Church
17010 Pomerado Road
San Diego, CA 92128
***Please note room change: We are now meeting in the Lower Fireside room. Park in the lower (southern) parking lot for best access to our new room. Lower Fireside is DOWNSTAIRS in the main church building.

http://www.tacanow.org/local-chapters/west/california/san-diego/

San Diego, CA 
Contact 1: Becky MacGregor
E-mail: cyberbeck@gmail.com
Contact 2: Erica Welker
Tel: (760) 268-0622
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 


San Diego, CA
Contact: Danna Korn - National Contact
Raising Our Celiac Kids - R.O.C.K.  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Encinitas, CA
E-mail:
danna@dannakorn.com
website:
www.dannakorn.com

San Francisco, CA
Contact: Jackie Corley
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
E-mail: Jacqueline_Scott_Corley@cand.uscourts.gov


Sebastopol, CA
Rock North Bay Chapter
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Jennifer Iscol iscol@aol.com 707-824-5830

Temecula, CA 
The Center for Autism and Related Disorders, Inc. is providing a free parent support group. Information about biomedical interventions as well as GFCF information. 

Date: Meets on second Tuesday of Month
Time:  6-8 pm 
Location:
28991 Old Town Front St. Suite 208
Temecula, Ca 92590

This meeting will include speakers as well as an opportunity to meet with other parents. For more information please call Samantha McLean at 951-699-8640 or email at s.mclean@centerforautism.com. This meeting is open to anyone and we would love to see new people attend! 


Valencia, CA
Biomedical/GFCF Diet Support Group
Sponsored by Santa Clarita Autism Asperger Network

Date: 4th Thursday of the month
Time -7:00 p.m. to 9:00 p.m.
Contact Information - Email mm.heid@gmail.com to RSVP and get location info. 

We also have general autism and Asperger Syndrome support group meetings in the mornings and evenings. 
Check online calendar for details.
No kids please 


Visalia, CA (central)
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Shannon Williams (559)- 741-1671
Rock_Visalia@webtv.net

Colorado

Erie, CO
GFCF Diet Support Group 
For more information contact Emmy Conroy  303-664-1295 or e-mail Emmyconroy@earthlink.net 

Fort Collins, CO
D.I.S.H. Dietary Intervention Support and Hope

Our group focus on providing dietary and biomedical support to parents who are using or interested in starting a GFCF diet, Specific Carbohydrate diet, Fiengold diet, and DAN! protocol biomedical treatments. Meets every first Tuesday 
Time: 7:00 -8:30 pm
Contact: Phyllis  dzerman2@yahoo.com  970-206-4979

Littleton, CO (Denver area)
Randy & Kim Toltz  (303)-470-0003
randy@thetoltzgroup.com
Raising Our Celiac Kids (R.O.C.K) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 

Peyton, CO
ROCK’n Peyton, CO
Raising Our Celiac Kids (R.O.C.K) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Crystal Brauer
719-494-8590 Brauer.family@yahoo.com
 

Connecticut


Trumbull, CT 
ROCK'n Connecticut
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
For more information contact:  Susy Ferreira 203-268-5071
sferreira5071@charter.net


Waterford, CT

Raising Our Celiac Kids - R.O.C.K. We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Donna Kensel CtCeliacKids@aol.com

 

Florida

Celebration, FL (Orlando)
Raising Our Celiac Kids (R.O.C.K) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Rose Parvaz rose.parvaz@celebration.fl.us


Coral Springs/Palm Beach
 
Contacts: Janna Faulhaber and Stacey Galper
Tel: (954) 255-7855
E-mail: Staceynagel@paxson.com
Raising Our Celiac Kids (R.O.C.K) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 

Ft.Lauderdale/ Plantation FL
GFCF Diet Support
Where:  Whole Foods  (Plantation)  cafe
When;   3rd Tuesday of every month
Time:     7-9 PM

Orlando, FL  
Date: First Sunday of each month 
Time: 1pm-3pm 
Location: 
Florida Hospital Orlando (Barker Conference Room) 
601 E. Rollins Street
Orlando, FL  

Contact: Deborah Pfeifle  dpfeifle@earthlink.net
Raising Our Celiac Kids (R.O.C.K) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 

Melbourne FL 
GFCF Diet Support Group Meeting
First Sunday of each month
2:00 p.m. - 4:00 p.m.
Meeting Place:
Member's house rotation
For more information:
e-mail Melvin & Laura Cairns
mcairns806@aol.com

Odessa (Tampa), FL 
Raising Our Celiac Kids (R.O.C.K.) Odessa Chapter 
We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contacts: 
Terri Willingham  willinghamster@gmail.com
or  Melissa Randsdell melrans@verizon.net 

Oviedo, FL
"Food For Thought" GFCF Diet Support Group
Date: 2nd Saturday of Every Month
Location: contact Karen Howington at 407-359-0356 or khowington@mindspring.com 
or Laura Costanzo at 407-249-5575

Children are welcome.

The group was started to help new families get started and have a contact person but our members range from those who have been on the diet for years to those even considering trying it.  We welcome anyone with an interest to help their child feel better!

Palm Beach Gardens, FL 
We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contacts: Kimberly Wade tkcrw@comcast.net  561-625-9005


Sarasota, FL
Biological Interventions for Autistic Spectrum Disorders (BIASD)
Meetings: Second Friday of every month
Time:  6:30 p.m 
Location: Whole Foods
1451 1st Street
Sarasota, Florida
Contact: Cassie Gorton 
biasd4u@verizon.net

Tampa, FL 
Contact: Melissa Ransdell
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
E-mail:melrans@tampabay.rr.com or (813) 265-8105

Georgia

Atlanta (North Geogia) 
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Children's Center for Digestive Health Care
Contact: Jeff Lewis, M.D. jlewis@ccdhc.org


Johns Creek, GA
Date:
Typically meets the 3rd Saturday of each month
time: 2:00 - 4:00 PM
Location: John's Creek United Methodist Church
Room 207
11180 Medlock Bridge Rd.
Johns Creek, GA 30097
child care not offered at this time

http://www.tacanow.org/local-chapters/southeast/georgia/

St Marys
A new GFCF Diet Support Group is being started in St.Marys. GA.  
For all those interested you may contact Carolyn and Mike Wright  cwright@camden.k12.ga.us

 

Hawaii

Honolulu, HI
Date: Typically meets the 2nd Monday of each month
Time: Registration begins at 6:45
Meetins are from 7:00 - 8:30 PM
Please do not contact the church for information about TACA meetins.
No child care at this time
http://www.tacanow.org/local-chapters/west/hawaii/

Idaho

Treasure Valley, ID
Treasure Valley Rock Support Group.  (Rockn’ in the Treasure Valley )
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Summer Boyle phone: 208-585-9491; e-mail: csboyle6@msn.com 

Illinois



Chicago, IL 
ROCK'n Chicago 60616
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact:
Alexandra Vavouliotis 847-962-7244 or alexvav24@mac.com 

Crystal Lake, IL
Date: Typically meets the 3rd Saturday of each month
Time: 4:30 - 6:30
Location: Home State Bank
Community Meeting Room (on basement levelL
611 S. Main Street
Crystal Lake, IL 60014
Child care not offered at this time
http://www.tacanow.org/local-chapters/midwest/illinois/crystal-lake/

DeKalb, IL
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Audrey O'Sullivan email: Audrey08@aol.com Tel: (815) 756-2606

Moline, IL
ROCK'n  Illinois (Moline 61265
contact:  Lesley Lamphier (309)  736-1507 celiackids@mchsi.com

Naperville/Wheaton, IL 
Date: fourth Wednesday of each month 
Time:  9:30 a.m. to 11:00 a.m. 
Contact: Please RSVP to Carolyn Lewis Carolyn@DietarySupport.com

Location: Whole Foods Market
607 W. 75th Street
Naperville, IL 60564


Children are always welcome! We share recipes and ideas for getting children to eat the healthiest food possible, and we always have goodies to sample that are gluten and casein free. We also take a few minutes each month to tour the store to see what's new. The group will continue to share allergy free recipes for those intolerant to dairy, corn, soy, and other allergens in addition to gluten-free recipes. 

Naperville & Oak Park, IL
Date: Typically meets the 2nd Thursday of the month
Location: Country Inn & Suites
1837 Centre Point Circle
Naperville, IL 60563
Child care not offered at this time

Peoria IL

GFCF Diet Support Group for the Greater Peoria IL area.
Date: First Monday of each month
Time: 7:00 p.m. to 8:30 p.m.
Location:  Peoria First Church of the Brethren
                   4714 N. Sheridan Rd., Peoria, IL.
For more information contact:
Kelly Buster
phone # (309) 367-2190 email: mk_buster@yahoo.com

Springfield, IL

GFCF Celiac (and Autism) Support Group Meetings 
St. John's Hospital, Rm. R & S
Springfield, Illinois

All our meetings are at St. John's Hospital, Rm. R & S, Sundays, 2:30-4pm  ALL meetings are free, and there is no membership fee.
For more information contact: Bev Smith, (217) 544-7962 or e-mail msomac@earthlink.net 
Leader: Joyce Hall
Joychll@aol.com
Co-Leaders- Barb Hand & Jane Gines

For parent support for gfcf diet/autism/ADD/ADHD in central Illinois, contact: Diane Wilson, wilsonx4@madisontelco.com

Marseilles, IL
GFCF Diet Support Group
Marseilles Fire Station
205 Lincoln Street
Contact: Sherri J Mathews for information 815-795-4260 or e-mail dmathews@bb-elec.com or ffwyf21@hotmail.com

Washington , IL [Heart of Illinois Celiac Kids] 
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact:  info@hoiceliackids.com
 

Indiana

Bloomington, IN
Biological Interventions in Autism
Contact: Jody Goddard
Telephone:(812) 876-3311 momtobandj@bluemarble.net

Indiana

Noblesville, IN
Date: Typically meets the 2nd Monday of each month
Time: 7:00 - 9:00 PM
Location: 14701 Cumberland Road Suite 300
Noblesville, IN 46060
Child care not offered at this time
 http://www.tacanow.org/local-chapters/midwest/indiana/


Henryville,  Indiana

ROCK'n  Indiana (Henryville
47126contact: Kristie Williams (812)  294-1179 kristiewilliamsrn@hotmail.com  
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 

Indianapolis, Indiana
Biomedical Interventions Support Group  
Contact: Alison O'Malley comalley@indy.rr.com
Support group for parents who are using biomedical interventions for their children with autism spectrum disorders.
Meets 2nd Monday of  month/7:00 p.m.
Theraplay
9919 Towne Rd.
Carmel, Indiana 46032

In addition to dietary issues, we discuss other medical interventions/research and have speakers on a regular basis. 


Indianapolis, Indiana
ROCK’n Indianapolis
contact: Kelly Kurzhal kellykurzhal@hotmail.com (317)  697-4933
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 


Mooresville, IN
  
Contact: Cindy Holder
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
E-mail: Holders2@comcast.net

Iowa

Davenport, IA
The Iowa Quad City Biomedical Autism Group
GFCF Diet Support
2nd Thursday of each month
Time: 7:00-9:00 pm
For more information contact:
Kristal Shaff 563-522-2035 kristalshaff@yahoo.com  

Des Moines, IA  
Contact: Mary Curran
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Des Moines, IA
E-mail: curran621@mindspring.com

Des Moines, IA (50312)
For more information contact: Lindsay Amadeo llamadeo@yahoo.com 515-274-3874
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 

Waterloo, IA
Cedar Valley Autism Spectrum Dietary Network
Meeting: Monday, December 6
Time: 6:00 P.M.
Topic: GFCF baking and cooking for the holidays
Location:  contact Amy for address  robertsa@mchsi.com  or 319-230-9260

Kansas

Lenexa, KS
Spectrum Parents Intervention Network Meeting (Spin) 
Date: This event repeats on the third Friday of every month.
Time: 7:00 pm - 9:00 pm
Location:
Great Plains Lab
11813 West 77th Street (The lab is located 1 block east of 77th and Quivira. )
Hosts:  Robin D. Weber & Lori Knowles
Information: 913 322-9196


Kentucky


Louisville, KY
Health & Harvest Natural Food Markets
3030 Bardstown Road
Louisville, KY 40205
Contact: Cathy Derringer
502-499-7261
Email at: Fightingautism@aol.com

Louisiana

Alexandria, LA
Autism Resources Intervention Support and Education
A.R.I.S.E. Network
Contact: Monica Dennis, Secretary  A.C. 318-466-9853 
                or Flo Thibeaux , Vice-President 225-753-9850

Support group for autism and sensory-challenged individuals   Support group working one-on-one with families, any issues related to autism and the GFCF Diet.  

Living Foods II 
Baton Rouge, LA
225-767-8222  

Maine


Somerset, MA
ROCK'n Somerset (MA)
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Stacey Nasrallah
and Imad Nasrallah phone: 508-674-6211
e-mail:  info@somersetrock.org

Maryland 

Annapolis, MD
Rock'n Maryland
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Steffani Mykins stfine@comcast.net  410-626-1958



Damascus, MD  (DC area) 
Contact: Andrea Howe
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
E-mail: andreahowe@juno.com


Gaithersburg, MD
Maryland Autism Recovery Coalition (MARC)
Contact: RSVP 
Cyndi Greene (301) 770-5020 cjgreene@starpower.net

Hagerstown, MD
GFCF Diet/SCD Diet Support Groups and Free Workshops

The purpose of the workshop is to educate families of autistics on dietary and biomedical treatments of autism that may help to decrease symptoms of autism in your loved ones.  Denise Hovermale is a DAN nurse certified in April 2006.

Normal Meeting Dates
Second Sunday of each month (except holidays)
Time:  1:00pm to 3:00pm Location:  Robinwood Church of God, 12030 Warrenfeltz Lane, Hagerstown, MD  21742 Sponsored by God's Little Miracles
For more information contact Denise Hovermale e-mail phovermale@msn.com or phone 301-797-5531.

Mount Airy, MD 
Free-Mealers GF/CF Diet Support Group
Location:  St. James' Episcopal Church
1307 North Main Street (Note: New church location)
Mount Airy, MD 21771
Contact: Anna Letaw  410-795-7950 annaletaw@comcast.net
A discussion and support group for parents and caregivers of children with autism and autism spectrum disorders, who are, or are considering avoiding gluten, casein and other foods in their children's' diets. The topic of biomedical intervention is also discussed. Speakers and other events scheduled throughout the year. 

Dates:  Second and Fourth Tuesdays each month
Time: Second Tuesday 10AM-12PM
**Children are allowed at Second Tuesday meetings only see below
Time: Fourth Tuesday 7PM-9PM , NO children allowed at Fourth Tuesday meetings. 

For postings about future meetings see 
http://health.groups.yahoo.com/group/Free-Mealers

**
Children allowed at Tuesday meetings only with the following caveats:
      * There are a few toys there, but, I encourage parents to bring some of their own.
      * The church IS concerned about their new floor and does request that children not bang their cars on it…so please keep that in mind
         when bringing your toys.
      * The church office is nearby and is fine as long as the children's noise does not interfere with the office. I do provide a small cotton rug
         that  helps with noise and protects the floor.
      * We meet next to the sanctuary and do not have our own room. Children need to be able to stay close by and not run in the sanctuary.


The North VA, MD and DC Metro Area R.O.C.K. Chapter
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Linda Hickman phone: 410-290-5224
email: hickman68@verizon.net


Severna, MD & Washington D.C.
Date: Typically meets the 2nd Tuesday of each month
Time: 7:00 PM
Location: Severna Park Baptist Church
506 Benfield Road
Severna Park, MD 21146
Child Care not offered at this time
 http://www.tacanow.org/local-chapters/northeast/maryland/washington-dc/

Massachusetts
 

 

Longmeadow, MA 
ROCK'n MA
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Christie Freda
cfreda@comcast.net 413-567-5748

West Boylston, MA
Autism Resource Center of Central Massachusetts
360 West Boylston Street Suite 204
West Boylston MA
508-595-9101 - Ask for Sue

Wrentham, MA
Date: Typically meets the 2nd Tuesday of the month
Time: 7:30 PM
Location: Senior Center
400 Taunton Street
Wrentham, MA

Child care not offer at this time
http://www.tacanow.org/local-chapters/northeast/massachusetts/

 

Michigan


Ferndale,  Romulus & Novi,  MI 

Contact: Stacy Hunter 
Email: StacyHunter@comcast.net
All families of children with autism are welcome.
Monthly support group meetings 
Online listserv
Special events and family outings
 

Howell, Michigan 
ADIG: Autism Dietary
Intervention Group
Meetings: Third Tuesday of every month
Time:  7:00- 9:00 p.m. 
Location:  St. Joseph's Church, 440 E. Washington St., 
Howell, Michigan 

Network of participating doctor's, neurologists, nutritionists, therapists, and stores. Support provided in areas such as nutritional diet (gluten free, casein free/ even soy, corn, and rice free diet information is available), chelation therapy, and motion therapy (yoga). Occasional Guest Speakers/ Monthly Newspaper Meeting Information
For more information contact: 
Deanna Seng dkseng99@voyager.net

 Minnesota


East Grand Forks, MN
Date: Varies.  Please check the meeting schedule on our webpage
Time: 6:00 PM
Location: Campbell Library
422 4th St NW
East Grand Forks, MN 56721
Sorry, we are unable to offer childcare at this time.
http://www.tacanow.org/local-chapters/midwest/north-dakota/

 

Plymouth, MN
Diet support group in the Twin Cities
For more information contact: 
Libby Bergman: 763-550-0806  Libbybill@aol.com

Minneapolis/St.Paul, MN Chapter - Support Group:
Contact: Lynda Benkofske E-mail:ljbenkof@ties2.net
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 

Mississippi

Columbia, MS Chapter - Support Group:
Contact: Beth Broom
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
E-mail: sky@zzip.cc

Missouri

Farmington Missouri
Contact: Beth Yount email bayount@earthlink.net 573-431-2934

O'Fallon, MO
Contact for more details:  Beth Anne Miller 636-294-2037 frankbethm@aol.com  
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
 

Montana

Billings, MT
ROCK'n Montana
Billings, MT  59102
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
For more information 
Contact: 
Perrin Grubbs perrin@bresnan.net (406)  655-7897

Columbia Falls, Montana
Gluten/casein free diet and other biomedical issues for kids with autism/ADHD
Contact: Kristi Jankovsky kristij@montanasky.net  (406) 892-1934
 

Nebraska

This is not a support group but this website is an excellent resource to help families who eat wheat free and dairy free in Nebraska. (Please note that verification needs to be made that the products listed on the website are not only wheat free BUT also gluten free.) The website has tons of recipes with picture indexes, a list of where you can by food and what it costs, information on calcium and ideas for low cost easy to provide snacks that can be shared with groups and classrooms.
 http://www.lincolntent.com/GFCF.html

Nevada

Las Vegas, NV
Date: Typically meets the last Saturday of each month
Time: 6:30 - 9:00 PM
Location: The Nevada Energy Building (The Wengert Room)
6226 West Sahara Avenue
Las Vegas, NV 89146
The building is on the north side of W. Sahara, just west of Jones.  Parking is in the rear lot.  The Wengert Room is inside the curved wall at the rear of the building.
Sorry, no child care offered at this time.
http://www.tacanow.org/local-chapters/west/nevada/

Reno, NV
Contact: Carrie Owen
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Phone: (775)  857-2708
email: owen4some@charter.net

New Hampshire

Bow, NH
NH Dietary Intervention for Autism and Related Disorders
Date: Third Tuesday of each month 
Location: Community Bridges
Contact:   Dawn Marquis heartmom2two@yahoo.com or 603-435-5313 for more info
 
We cover all aspects of dietary intervention including intro to GFCF, other food sensitivities including soy, phenols, corn, rice, rotation diets, dyes, etc, etc. We offer monthly group meetings, email list, recipe swaps, general info to diets and other resources. 

Hampton, NH
"Seacoast Dietary Intervention for Autism"
Meetings are once a month during the school year. If you would like more information contact Peg Tipton 603-929-3862  peg.tipton@comcast.ne or Dawn Brady 603-474-6529 brady-family@comcast.net  
 

Manchester, NH
ROCK'n New Hampshire

Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
For More Information contact: 
Michelle Ouellette rocknh2006@gmail.com  603-627-1831

New Jersey
 

Bergen (NJ)/ Rockland (NY) Chapter
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
For more information contact:
Gabrielle Simon
e-mail: nynjrockmom@yahoo.com or 646.342.6960


Cherry Hill, NJ

Support Group for Adults and for Parents of Children who maintain a restrictive diet avoiding gluten.   
Meetings every other month .
For more information:
Contact Donna donna@bellmanor.com
 856-354-8642.

Blairstown, NJ
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
For More Information contact:  Marla Benson MBenson890@aol.com  (808)  362-7752

Marlboro, NJ

Freehold Chapter "Raising Our Celiac Kids (R.O.C.K.)" We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
For More Information contact:

Elissa Carlin
Marlboro, NJ 07746
732-252-8309
ElissaC75@aol.com
 

Morristown, NJ
ROCK'n New Jersey (Morristown 07960)
Contact: Andrea Kitzis Smith (
201)  965-7309
akitsm@att.net

Hackensack, Bergen County, NJ
Mosaic Group
Meetings 3rd Wednesday of each month 8:30 p.m.  to 10:30 p.m.
The Arc of Bergen & Passaic Counties
223 Moore Street
Hackensack, NJ
201-343-0322

Various biomedical interventions & related educational methods (including GFCF Diet Therapy) All are welcome. For more information join our listserv at Mosaic-List@egroups.com or contact Barbara Strate at 201-944-3321

North Jersey Chapter
"Raising Our Celiac Kids (R.O.C.K.)" We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
For more information contact: Ellie Fried 973-912-9253  ejkf54@hotmail.com

Woodbridge, NJ
Date: Typically meets the 3rd Sunday of each month (starting February 2012)
Time: 1:30 - 3:30 PM
Location: Hampton Inn Woodbridge
370 Route 9 North
Woodbridge, NJ 07095
**GPS Alert - When using a GPS to find the Hampton Inn, please use the following address: 370 US Highway 9 North, Woodbridge, NJ 07095**
Child care not offered at this time, sorry.
http://www.tacanow.org/local-chapters/northeast/new-jersey/

 

New Mexico

Albuquerque, NM
Cedar Crest (Albuquerque), NM  87008
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Traci Shrader
(505)  450-1156  or email tashrader@msn.com 

New York

Auburn, New York
ROCK’n New York ( Auburn ) 13021

Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
For more information contact: Nicki Hai:  jnhai@roadrunner.com   315-252-2764 


Bedford Hills, New York

GF/CF support group for parents experienced or new to the diet. Opportunity to share resources, products and information.
For more information contact:  Sue Bronic  Bronicos@msn.com 


Islandia, NY
Date: Typically meets the 1st Friday of each month
Time: 7:15 PM Networking; Meetings start at 7:30 PM
Location: NuLife Foods/Whitsons
1800 Motor Pkwy
Islandia, NY 11749
Child care not offered at this time
http://www.tacanow.org/local-chapters/northeast/new-york/


Jamesville, NY

ROCK'n Upstate New York
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
For more information contact:
Karen Dorazio 
Jamesville, NY 13078
kdorazio@twcny.rr.com
315-469-8154 

Lake George, NY (Glens Falls Region)
ROCK'n Upstate New York
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
For more information contact: Lisa Fox  518-668-5838
fox_lisa@hotmail.com

Long Island, NY Northern Nassau County
Raising Our Celiac Kids (R.O.C.K.) - Long Island Chapter Northern Nassau County
We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
For more information contact:
Contact: Jill Schneider chairman jahms@optonline.net  516-551-4564 
Randi Albertelli co-chairman rsquared31@optonline.net 

Long Island, NY Suffolk County

Raising Our Celiac Kids (R.O.C.K.) Suffolk County
We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
For more information contact: Jamie Flecker co-chairman 631-846-9384 candlesbyjamie@yahoo.com


Lynbrook, NY (South Nassau)
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. Group is limited to
south Nassau activities.
Contact: Angela Silverstein (516)  593-2904  venusangmm1@optonline.net  

Manorville , NY
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
For more information contact: Christine Lauria (631)  745-5996 eastendrock@yahoo.com

New York City
For more information contact: Melanie Meyers Cushman
e-mail: occultgrrl@yahoo.com or 212-473-4766

Rockland (NY) /Bergen (NJ)Chapter
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
For more information contact:
Gabrielle Simon
e-mail: nynjrockmom@yahoo.com or 646.342.6960

Rome, NY
Mohawk Valley R.O.C.K. (upstate New York)
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
For More Information contact:
Rebecca Madeira 315- 337-7671celiacparents@earthlink.net

Thompson Ridge, NY
ROCK’n Hudson Valley, NY
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
For More Information contact:

Terresa Bazelow (845)609-7432
HVNYROCK@aol.com

Williamsville, NY.
Support Group
Meetings on the third Wednesday of every month from 7:00 to 9:00
HSBC Bank Building
Transit Road
Williamsville, NY
We have parents and many teachers in attendance.  We've started a GFCF co-op through Northeast Cooperatives.  Membership into the co-op is a one-time $8.00 per family charge. (Meetings are free) We are located on the third floor of the HSBC Bank Building, Transit Road, near Main Street.   For more information, contact Kathy at kazoo@pcom.net or Michelle at chsjer25@aol.com.  We discuss meal ideas, shopping tips, recipes and health issues.

North Carolina

Asheville, NC
Raising Our Celiac Kids (R.O.C.K) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Marzieh Davis

marzieh@skyrunner.net

Cary (near Raleigh), NC
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Andrea Otken-Dennis (Andrea Dennis)
Tel: (919) 303-4518
E-mail: adennis@ipass.net

Harrisburg, NC 
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact:
Linda Witherspoon
704-957-6100
Linda.witherspoon@aol.com


Huntersville, NC

Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Nikki Everett
phone: (704)  804-4090
E-mail:
haircolorexpertise@hotmail.com

Wilson/Eastern North Carolina
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact:

Carrie Forbes
252-238-3132
gingerlemongirl@gmail.com


North Dakota

Bismarck, ND
Central ND Celiac Resource Group.
First Saturday of even months (Dec., Feb., April, June, etc.)
11:30 am
Great Plains Rehabilitant Services
Contact: Lila Brendel 258-7800

East Grand Forks, ND
(On border of  North Dakota)
Date: Varies. Please check the meeting schedule on our webpage
Time: 6:00 PM
Location: Campbell Library
422 4th St NW
East Grand Forks, MN 56721
Childcare not offered at this time.
http://www.tacanow.org/local-chapters/midwest/north-dakota/

Fargo, ND
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Stacey Juhnke (701)  237-4854  dsjuhnke@yahoo.com

Ohio

Akron, OH 
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Sue Krznaric skrznaric@cs.com  (330) 253-1509l  

Cincinnati, OH
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Beth Koenig
BethKoenig@cinci.rr.com


Cleveland, OH
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact:
Tracey Lavine
Solon, OH 44139
Tracey95@aol.com 216-533-1285


Toledo, OH
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact:
Amy Kinkaid   kinkaida@bex.net 415-509-6913

Oregon

Lake Oswego, OR 
Parent's of Children with Autism
GFCF Diet Support Group
Oswego Heritage House
380  10th 
Lake Oswego, Or  97034

Support group meetings held every 3rd Thursday of the month
Time: 7:00 p.m..
Contact: Juliana Hunt 503-722-2265 juliana22hunt@msn.com

Portland-Vancouver Gluten Intolerance Group
Support group meetings for Gluten Intolerance 
(Note: no meetings in January or August)
Time: Saturday mornings.

Location & Information contact: 

Joanne Galloway 360-695-5568 jagoheen@pacifier.com  
Editor of Gluten-Free News
& Learning to Live With a Gluten-Free Diet

OR 

 J. Huffstutter  jeannehuff@aol.com 

Salem, OR
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Kristen Klay
(503) 581-3884  kristenklay@yahoo.com

Pennsylvania

Bethlehem Chapter (Allentown area)
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Kate Panagia
E-mail: kapanagia@yahoo.com

Camp Hill , PA
ASD HOPE
4th Tuesday of the month
Time: 6:30 PM
Location:  Camp Hill Giant Community Room,  Camp Hill, PA
Contact:
Joy Fasick  732-8400 ext.8120  Email - Asdhope1@yahoo.com 

Whether you’re just starting the gluten-free, casein-free diet or have been at it a while and feel like you’re stuck in a rut, you may be looking for new ideas about how to make it work for your family.  Join us as we discuss some challenges and solutions for successful implementation of the diet.

The group will meet monthly at the Camp Hill Giant for an opportunity to relax, talk with others in similar situations, and learn from each other. Topics will be determined by the needs of those involved, but will likely include food diaries, replacement ingredients, recipe swap, where to find specific foods, eating away from home, GFCF holidays, and more.

An outreach of ASD HOPE, the GFCF Support Group is facilitated by Joy Fasick, a mother who has seen tremendous improvements from her son’s two gluten-free, casein-free years and who also balances additional food allergies/restrictions in the family diet. 

Supper/snacks can be purchased in the marketplace; no outside food 
(Please note that childcare will NOT be provided for this event.)

Erie, PA
GFCF Parent Support Group Meeting

Parents in Northwestern PA and Northeastern Ohio are invited to attend the GFCF Parent Support Group Meeting.  Bring questions and tips to share. The Intermediate Unit is going to sponsor a parent training in January which will also be discussed. 

For more information contact: 
Christine Svetz, CPA  at  csvetz@gremlan.org.or (814) 336-3938
Hill, Barth & King LLC
15942 Conneaut Lake Road
Meadville, PA 16335

Glenside, PA 19038
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact:
Wilhelmina Green
215-756-2708
Wilhelmina.green@gmail.com

 

Greensburg, PA
A local group meets bi-monthly to discuss the GFCF diet and how to plan a GFCF lifestyle
For more information contact April at  e-mail asteffey@wpa.net.

Greenville, PA
Contact: Fiona Garner garner6@archgate.net  
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 

Hanover , PA
ROCK’n Hanover , PA   17331
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Melissa Panzer 717-633-1667 Glutenfree4life@live.com 


Lansdale, PA    (ROCK Bucks / Montgomery County)
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. Contact: Holly and Steve Staugaitis
Phone: 215-997-2706
E-mail:
hollystaugaitis@yahoo.com


Lititz (Columbia, Lancaster), PA
Raising Our Celiac Kids (R.O.C.K.) - We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
For more information contact: Janelle Gregory 717-687-8586 janellegregory@verizon.net 


Newtown, PA (Bucks County)
Gluten-free Casein-free Support Group Meeting
First Thursday of every month (schedule change during June, July & August)
7:00 PM - 9:00 P.M.
Autism Spectrum Resource Center
14 S. State Street
Newtown,  PA
(2nd floor above Newtown Travel)

Bring a favorite gf/cf product or recipe. Or if you are new to the diet, just come and listen and get support.  $5 per person donation payable at the door.  This group meets monthly.  For more information and to RSVP contact Elsie McHale  eljoco99@comcast.net or (215) 230-9264

If inclement weather, I will e-mail any cancellation by 5:00 pm that day or call me at the above number.

Newton Square, PA

Date: Typically meets the 1st Friday of each month
Time: 7:00 to 7:15 Parent Support and Networking
7:15 PM Introduction and Meeting Presentation
Location: Saint Alban's Episcopal Church
3625 Chapel Road
Newtown Square, PA 19073
Child care not offered at this time, sorry.

http://www.tacanow.org/local-chapters/northeast/pennsylvania/

Pittsburgh, PA  (Gibsonia area)
Biomedical Interventions for Autism Spectrum Disorders: A forum for families to share information and support.  
Date: 3rd Thursday of every month
Time:  7:00 pm  
Location: Family Behavioral Resources, 4156 Kenneth Drive, Gibsonia, PA 15044
Call 724-443-5859   Dan Hollenbeck or e-mail info@fightingautism.org for more information.


South Carolina


Clover, SC 29710
Raising Our Celiac Kids (R.O.C.K.)
We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Lauretta McInnis laurettamcinnis@gmail.com  803-222-5143

Tennessee

Germantown, TN
Autism Spectrum Disorder Support Group
CONTACT:  
Laura Corby for more information Phone: 758-8288 laura@autismsolutioncenter.com

Date:  2nd Sunday each Month  (unless otherwise noted)
Time:  6:00pm - 9:00pm
Location:   Studio B - 751-1660 
                    2115 Merchants Row
                    Germantown, TN -Saddle Creek
                    Between El Porton's and Garibaldi's

PURPOSE: To assist parents in obtaining the necessary information and resources to access appropriate biomedical, educational, and therapeutic care for loved ones with ASD's. 
Note: We deal with all Autism Spectrum Disorder issues, so our topics and speakers can very greatly! We do have a GFCF Diet Committee that meets to discuss these issues and new info. They also plan community education/informational projects, etc.

DETAILS: we will meet the 2nd Sunday of each month at 6:00pm in the same location. (Unless otherwise specified.) We plan to have informational guest speakers at most meetings and also plan to participate in information swaps, co-op purchasing, planned group activities and outings, and other related activities. We will also be discussing biomedical treatment issues in ASD's. ** Childcare is available only if advance reservations are made to insure adequate childcare coverage.

Nashville, TN
Raising Our Celiac Kids (R.O.C.K.) - Nashville Chapter
We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Janet Lowery 
email:
janetlowery@comcast.com
Tel: 615-758-2674

Woodlawn, TN
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Shantal Green
931- 648-2289
skgreen@syberwerx.net

Texas
 

Austin, TX   (Four  different Support Groups listed below)

#1 Autism Treatment Forum
Sponsored by the Autism Society of Greater Austin
The Forum is a group of parents and others interested in the dietary, nutritional, and bio-medical treatment of autism spectrum disorders.  Sometimes the Forum will have a speaker, other times there will be open discussion.  Everyone is welcome. 

Date: 1st Wednesday of every month (except major holidays)
Time: 7:00 p.m. - 8:30 p.m.
Location: 
Old Quarry Branch of Austin Public Library
7051 Village Center Drive
Directions: From Hwy 360, go east on Spicewood Springs Road,
turn right onto Mesa, turn left onto Far West, then turn right onto Village Center Drive. Located just off Far West Blvd, between the Post Office and HEB.   
For more information, contact Dianne Doggett, Forum Coordinator, at GaryDianne@aol.com
 

 

#2 "Austin Gluten-Free Friends"
Support Group Meeting  
5604 Southwest Pkwy. #3113

Austin, TX 78735
3rd Thursday of every month 
7:00 p.m.
Everyone is  welcome  who wants to learn a gluten-free, all natural, healthy approach to eating. For more information contact:
Kay Stence, Support Group Leader 512-442-4008 
kstence@marykay.com

#3 ROCK'n Austin zip code: 78739
Alamo Celiac GIG
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
For more information contact: Frances Kelley
fkelley@austin.rr.com 512-301-2224



#4 The Austin Celiac-Sprue Support Group 
Tarrytown United Methodist Church 
2601 Exposition Blvd, Room 208 
The group usually meets quarterly. All interested persons are invited to attend. 
For further information please contact Francie Kelley at 512-301-2224 or email at fkelley@austin.rr.com



Dallas-Fort Worth, Texas
Special Diet Support Group
Healthy Approach Market
5100 Hwy 121
Colleyville, Texas 76034
4th Tuesday of every month
7:00 pm-8:30 pm
RSVP: (817) 399-9100

For more information about this group contact Mika Williams at (817) 498-9881 or if out of the local  DFW area:  (800) 498-6386. This organization will further the understanding and implementation process of special diets to aid in the treatment of Autism & related developmental disorders. Discussions and presentations will cover, gluten/casein free diet, food intolerance's and sensitivities, allergy testing, nutritional supplementation and help to provide the community with resource information. Healthy Approach Market has over 12 feet of gf/cf foods including flours etc.

Dallas Area Chapter
Dallas/FortWorth - Support Group
Raising Our Celiac Kids (R.O.C.K.) - (Wylie Chapter) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 

Contact: Kelly LeMonds, Leader
1821 Spinnaker Way Drive
Wylie, Texas 75098-7855
Tel: (972) 442-9328
e-mail:leader@dallasrock.org  

Dallas-Fort Worth
The Lone Star Celiac Sprue Support Group 
Devoted to information dissemination and sharing to help those who have the Celiac disease cope with this life changing disease. We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 

Date: Third Saturday of month
Time: 9:00 a.m.
Location: Presbyterian Hospital of Dallas 

Ft. Worth, TX
North Texas GF Kids Club. We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 

Contact: Betty Barfield, President
North Texas Gluten Intolerance Group
817-967-2804 work
817-577-0212 home
817-967-9697 fax
email: betty.barfield@aa.com 

Houston Chapter, TX- Support Group:
Contact: Faye Sallee
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
E-mail: fsallee@houston.rr.com

Houston - Support Group
Contact: Janet Y. Rinehart, Chairman
Houston Celiac Sprue Support Group
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Tel: (281) 679-7608
E-mail: txjanet@swbell.net

Houston
ROCK'n Houston. Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Monica Ryan phone 713-667-1963 email Mwryan@ipa.net 

San Antonio
Contact: Amy Holt
E-mail: info@rocksa.org
telephone: 1-210-481-0659

Victoria, TX.
Contact information: Julie Bauknight  (361)  572-9252
email: eavesfamily@cox-internet.com
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 

Lubbock, TX      
ROCK'n  Lubbock (TX) 
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Beth Trostle (806)  794-5917
email: 
 calvintrostle@nts-online.net    

 

Utah

Ogden, UT  (Salt Lake City area)
Contact: Eileen Leatherow
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
 e-mail: e.leatherow@attbi.com  

Vermont

Vermont (Serving all areas of Vermont)
Support group meetings for families and friends of children with autism. 
Location: Williston, Vermont
Date: Meetings are held the first Monday of each month 
Time:  7 - 9 p.m. 
Contact: Lynn George 802-660-7240 Email: LynnMGeorge@adelphia.net

Virginia

Ashburn, VA  20147
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: 

Keith  Bird
Ashburn, VA  20147 

703 348 7607 rock@birdmk1.plus.com

Bristow, VA 20136
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Michael and Elizabeth Brown
 
2xx1xy@comcast.net

703-753-9161
  

Fredericksburg, VA
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact:
Kathy Paz-Craddock
703-507-0609
kalalilys@gmail.com

Paeonian Springs
, VA   20129

Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Becky Shore 571-252-0036 zoo2u@comcast.net

Richmond, VA #1
Date: Please check our webpage for dates
Time: 7:00 - 9:00 PM
Location: LaPrade Library
9000 Hull Street Road
Richmond, VA 23236
Child care not offered at this time, sorry
http://www.tacanow.org/local-chapters/northeast/virginia/

Richmond, VA #2
Raising Our Celiac Kids (R.O.C.K.) We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contacts
Debbie Beam phone: 804-527-3424 e-mail: MikeDebBeam@aol.com
OR  Janette Rose phone: 804-556-9171 e-mail: Vamango@juno.com

Virginia Beach, VA
ROCK'n Virginia Beach 
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Cynthia Olson e-mail:glutenfreemom@hotmail.com 


D.C./Metro Area  (Northern Virginia)

Severna, MD & Washington D.C.
Date: Typically meets the 2nd Tuesday of each month
Time: 7:00 PM
Location: Severna Park Baptist Church
506 Benfield Road
Severna Park, MD 21146
Child Care not offered at this time
 http://www.tacanow.org/local-chapters/northeast/maryland/washington-dc/
 

The North VA, MD and DC Metro Area R.O.C.K. Chapter
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Linda Hickman phone: 410-290-5224
email: hickman68@verizon.net
 

Washington

Bellevue, WA.  
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
For more information contact:
Nick & Sue Pierson
  425-401-9163 NicholasPierson@Hotmail.com or Sue_Pierson@hotmail.com

Bellingham, WA  98229
*ROCK'n Washington
Location: 
Community Food Co-Op  Building 
1220 N. Forest St., Bellingham, WA

Always optimistic in outlook, we can help you find the right places to shop for gluten free grains, flours, and prepared foods.  We will be sharing our recipes for gluten free goodies that all ages enjoy.

Facilitated by naturopath- Dr. Jean McFadden Layton
If you need more information, please call Natural Health Bellingham at 360-734-1659.
This group has no dues or fees, donations are accepted to cover costs of the meetings.

Bothell, WA 98001
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 

For more information contact:
Lynn
Crutcher
gfkids1@yahoo.com

425-205-1327

Poulsbo, WA 98370
For more information contact:
Tim & Dawn Simonson timsimonson@csi.com  360-779-9292

Richland, Washington
Neurological Center
Serving the Tri-City area.
Meetings held every 3rd Monday of the month
For more information contact:  Vicki  at 509-545-5944
Many topics discussed

Seattle, WA
Date: Meets the 2nd Saturday of each month
Time: 2:00 PM
Location: Birth and Beyond
2719 East Madison Street
Seattle, WA 98112
Coordinators: Janelle Hall and Sarah Richards
Child care not offered at this time, sorry.

http://www.tacanow.org/local-chapters/west/washington/

Spokane, WA
ROCK'n Spokane
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Jennifer Fancher 509-891-7250; e-mail: jenf@csispokane.com 

Vancouver, WA
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Theresa Rachetto 
phone:
(360) 713-1504
theressarachetto@gmail.com


Yakima, WA 98908
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Shanta Gervickas Shanta@network7.com 509-965-1130  

West Virginia
 

Hurricane, WV  - Support Group:
Contact: Karen Daniel
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
E-mail:
krdaniel@suddenlink.net

Beckley, WV 
Contact: Janet Lintala, DC @ 304-255-2550
The Autism Recovery Resource Center, PLLC
2401 S. Kanawha St Suite 101
Beckley, WV  25801

Scheduled Workshops
Lending library for the GFCF Diet, the Specific Carbohydrate Diet, as well as others, as well as many, many books on autism, ADHD, and related topics.  People can borrow the books for free.

Janet will meet people at our local store to show them how to shop for the diet, plus she  can help them adapt their recipes.  (All at no charge)

The Autism Recovery Resource Center is a Non-profit biomedical treatment center but office visits are $15, and we raise lots of "angel money" to help those who cannot even afford the $15.  We are just trying to be a resource to the area.

Janet Lintala, DC
Defeat Autism Now! clinician

 Wisconsin

DePere, WI
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Pam Rourke 920-339-7867 mrourke@new.rr.com 

Fitchburg, WI
Date: Typically meets the 2nd Tuesday of each month
Time: 6:30 - 8:30 PM
Location: Wisconsin Integrative Hyperbaric Center
6200 Nesbitt Road
Fitchburh, WI 53719-1949
*Note: Call WIHC (608) 278-4268 to check the status of our meetings if the weather is bad.
Child care not offered at this time, sorry.
http://www.tacanow.org/local-chapters/midwest/wisconsin/

Jackson, WI
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Yvonne Schwalen 
trainman280@netzero.net

Canada

Brooklin - Ontario, Canada
Raising Our Celiac Kids (R.O.C.K.)  We welcome families of children with autistic spectrum disorders who are using a gluten-free/casein-free dietary intervention program. 
Contact: Janet Smith Janets100@hotmail.com  (905)  655-1208

 

United States

The principle aim of this list is to provide a discussion forum for parents of children on the autism spectrum who are avoiding gluten and casein and other substances in their children's diets. We hope that the discussions will include practical information and tips on following a GFCF (etc) diet; scientific research and opinion; the latest developments in understanding GFCF (etc) diet-related health problems; your personal stories and experiences with relation to GFCF (etc) problems; information on what food is GFCF (etc) and what is not; tips on how to eat out of the house; recipes and tips on how to cook and prepare GFCF (etc) food; what vitamins, minerals, herbs and other supplements may be appropriate for a child with autism, how to cope with difficult diet demands, plus support for parents. Appropriate topics for discussion on the list include anything at all related to diet and autism spectrum disorders-including GFCF but also yeast, nitrates/nitrites, dyes, vitamins, minerals, supplements, dealing with teachers, friends, schools, outings, siblings, testing, etc. Membership necessary, easy and free to join. 
List Owners: Cara Lewis and Wendi Dupuy
http://groups.yahoo.com/group/GFCFKids/join

Celiac Disease

What is celiac disease?
Celiac disease is a genetic disorder affecting children and adults. People with celiac disease are unable to eat foods that contain gluten, which is found in wheat and other grains. In people with celiac disease, gluten sets off an autoimmune reaction that causes the destruction of the villi in the small intestine, causing damage and illness. 
What are the symptoms of celiac disease?
Symptoms of celiac disease include diarrhea, weight loss, abdominal pain, chronic fatigue, weakness, malnutrition, and other gastrointestinal problems. In children, the symptoms may include failure to thrive (an inability to grow and put on weight, irritability, and inability to concentrate, diarrhea and bloating. Further, people affected by celiac disease may experience extra intestinal symptoms that involve many systems and organs including bones (osteoporosis, arthritis, and joint pain), blood (anemia and bleeding), reproductive system (infertility and reoccurring abortion), nervous system (chronic fatigue syndrome, depression, dementia), and behavioral changes.

How common is celiac disease?
Nearly one out of every 150 Americans suffer from celiac disease, according to a new study by the University of Maryland Center for Celiac Research in Baltimore. The research indicates that celiac is twice as common as Crohn's disease, ulcer. colitis and cystic fibrosis combined. First degree relatives of celiacs (parents, children, siblings) and those with other autoimmune disorders, such as Type I Diabetes and Rheumatoid Arthritis have a much higher prevalence of celiac disease.

How is celiac diagnosed? 
A blood test is now available to screen for the presence of specific antibodies. A biopsy of the intestine (before beginning a gluten free diet) is needed to make a final diagnosis.

What are the long-term effects of celiac disease?
Untreated celiac disease can be life threatening. Celiacs are more likely to be afflicted with problems relating to malabsorption, including osteoporosis, tooth enamel defects, central and peripheral nervous system disease, pancreatic disease, internal hemorrhaging, organ disorders (gall bladder, liver, and spleen), and gynecological disorders. Untreated celiac disease has also been linked to an increased risk of certain types of cancer, especially intestinal lymphoma.

What is the treatment for celiac disease?
There are no drugs to treat celiac disease and there is no cure. But celiacs can lead normal, healthy lives by following a gluten free diet. This means avoiding all products derived from wheat, rye, barley, oats, and a few other lesser-known grains.

R.O.C.K.

R.O.C.K. is a support group for parents, families and friends of children who cannot tolerate gluten in their diet.  Families implementing a 
gluten free and casein free diet as therapy for their autistic spectrum children are also welcomed. Group meetings help parents deal with
the unique challenges which include: 

  • Finding "fun" gluten-free treats for kids

  • Menu ideas for school lunches, quick dinners, and sports snacks

  • Helping the kids to take responsibility for reading labels, cooking and planning/preparing food

  • How to prepare for unexpected birthday parties and food-oriented activities at school, church, and elsewhere

  • Halloween, Easter, and other special days - how do we include our kids safely?

  • Educating day-care providers and teachers - without burdening them

  • Dealing with grandparents, babysitters, and "helpful" friends who offer gluten-containing foods to our kids

  • Ensuring our kids won't cheat, and what to do WHEN they do

  • Sending kids away to camp, friends' houses, and other times when we're not around to help

People are invited to contact R.O.C.K.
via e-mail at
danna@dannakorn.com
Website:
www.dannakorn.com

 

PASS

If no meeting is posted below for your area we suggest visiting ANDI (Autism Network for Dietary Intervention) www.autismndi.com. "The PASS List" (Parent Support System), managed by Karyn Seroussi and Lisa Lewis, consists of over 150 volunteers in 30 states and 11 countries. These parents have offered to provide support to other local parents "doing the diet".  Many of them have founded, or belong to local support groups for dietary intervention. 
Note: asterisks next to individual names indicate local GFCF  Support Group Meetings

 


Meeting Guide

Helpful Suggestions for Organizing Local Support Group
How To Start A Support Group

A support group can make all the difference for your community. 
Not only will you get a lot of support and feedback to benefit your child, you will also:

  • Make folks more aware about autism
  • Make new friends with similar interest: autism!
  • Help other families with autistic children
  • Organize local resources to help the children affected in your community
  • Make a difference with your time on this planet  

I highly recommend starting a support group. We started with dietary intervention topics and sharing ideas – which could also lead to other topics including: medical intervention, special education law, interfacing with local doctors & children treating autistic children, finding good therapists, neurology, alternative therapy options, socialization, play dates, activities as a group, and support for parents.  

Background:  

My husband and I started TACA (Talk about Curing Autism) in November 2000. We did very little to get our initial meeting started and notifying parents.  Basically we followed the guidelines in this handout.  Our first meeting was 15 parents in our living room.  Now TACA has over 300 members with three meeting locations in Costa Mesa , San Diego , and West Hills , California  

What Does a Support Group meeting look like?  

  • We set up our support group meetings to be informative, informal, and a place for support (hence the name!)  Here is what a typical meeting format looks like:
    • Start time – 15 minutes: wait for arrivals to all arrive
    • 15 minutes – 25 minuets:  Announcements, upcoming events, news in the autism world.
    • 25 minutes – 80 minutes:  educational format of the meeting
    • 80 minutes – until done:  support round robin.  (Have each member introduce themselves, age of child, diagnosis of child, when child was diagnosed, then the questions or comments for the group.)  We would give each member 5 minutes to talk – over your meetings will go on for hours!
    • Note:  typical meetings go for 2-3 hours with an average of 45 people in attendance.  Less time is required for smaller groups.  

How to find interested members:  

  • Other parents of ASD children you may have met at Early Intervention Classrooms, regional center, school districts, any other autism therapy sessions, church, etc.
  • Ask to post flyer/poster with meeting information in Speech Therapists offices, Occupational Therapy Offices, schools, and any ASD Intervention location, etc.
  • Ask the owner/manager of your local Health Food Store (HFS) if you can display a flyer/poster in their store.
  • If you wish to have your support group information listed on the Community Bulletin Board o www.gfcfdiet.com contact  Judy@gfcfdiet.com
  • Central Location in your Community
  • Post on YAHOO GROUPS that have an autism focus.  Go to http://groups.yahoo.com/ and type in AUTISM. 

Potential Locations:  

  • Churches, Temples
  • YMCA
  • Local Universities
  • Local schools
  • Therapy Center
  • Home (I started here.  It was very convenient to have it at home)
  • Community Center
  • Library
  • Health Food Stores (Restaurant)
  • Kinko's (some have conference rooms)
  • Members company training or conference room  

Suggestions for Topic Discussions  

  • Dinners, eating out, shopping, food co-ops, Bulk ordering of select GFCF Supplies, recipes,
  • For those without a computer, you may want to print out a list of testing
  • sources, phone numbers, Local Health Food Stores, and markets where supplies can be bought (ie Xanthan gum)
  • Consider having a guest speaker if possible, informed local dietitian, DAN doctor, etc.
  • Plan a “cooking night” at a local church kitchen with experienced GFCF Moms and Dad’s learning about how easy and great tasting  and nutritious GFCF food can taste!
  • Homemade GFCF Cookie Exchange, GFCF Cake Exchange, Frozen Meal Exchange,) Subject to be discussed (lunch box ideas, dinners, siblings, etc. Contact person & phone # (optional)
  • Sharing medical stories (resources, supplements, treatments, etc)
  • Special Ed law presented by a special ed attorney
  • Tips & Tricks (for any topic)
  • Therapies - Behavioral, Social, OT, PT, Speech
  • Favorite local shopping places (for all topics: restaurants, supplies - food & therapy, toys, play areas, etc.)
  • Safety for Autistic kids (in house, outside, safety bracelets, etc.)
  • Dealing w/ difficult behaviors
  • Autism & Politics: how to get involved and make a difference
  • Autism from a parents view (Find an autistic adult to speak)
  • Regional Center & School district: compare provided services
  • Working with CAN, ASA & other support groups: how to get involved and make a difference (similar topic huh??)
  • A scientist with the latest in Medical Research for Autism  

NOTE: It is very easy to find speakers!  Just call and ask providers that work with your child or ask other members to help!  Many will provide informational presentations (without a sales pitch!!!) to groups at no charge.  

Scheduled Monthly Meeting  

  • In order to provide consistency for support group meetings, we suggest holding meetings on the same day and at the same time every month. (ex: First Tuesday of every month/ last Thursday of every month, etc.)  Scheduling meeting times and locations in advance will guarantee your meeting location and times. It will also allow parents to arrange their busy schedules accordingly.  Always remember to verify a week in advance that your room is still reserved for your meeting with the correct date and time.
  • Email information which can be posted on The GFCFDiet Support Group Bulletin Board. We will need the following information for posting information to the website: City /Town/ State , Location  (include address if appropriate), Name of Contact/email address/phone if appropriate.  e-mail:  judy@gfcfdiet.com  

Organizing Meetings  

  • Refreshments (GFCF) · This is a good opportunity to have a “Taste Testing!”
  • For the first meeting you may ask your local Health Food Store to provide you with several packages of GFCF Food.   These products can be divided up into separate baggies with food item name and where to purchase the product, price/quantity, etc. These baggies can be taken home for children to sample
  • Consider contacting some of the individual manufacturers of GFCF Foods that are listed under the manufacturer section on www.gfcfdiet.com.
    • Contact Allergy Grocer/Miss Roben's
    • Contact Gluten Solutions
    • Contact Kinnikinnick Foods  
    • Enjoy Life Foods

Taste Testing  

  • Divide food into separate baggies for members to take home to children
  • Label each bag with item name and where to purchase & price/quantity – encourage members to take samples home!
  • Make it easy on your guest, only serve GFCF foods – that way there is no asking about each food! 
  • If the food is prepared – have a copy of the recipe available for guests.
  • Have each member bring something to share with the group.  

Meeting Agenda – How to Stay Organized!

  • Free form meetings are nice, but having an agenda keeps people coming back.  Agendas could include:
  • Organize your support group members in Excel or Access or in a file.  Have them organized by school district, type of therapy program, medical protocol being pursued.  This way you can refer folks to help each other that have similar needs.

    Resources for the Meeting:  

  • Bring a copy of the following books to the meetings for easy reference:
    • "Successful Diet Intervention for Autism & PDD" by The GFCFDiet   
       Support Group
    • "Special Diet for Special Kids" by Lisa Lewis, Ph.D.
    • " Unraveling The Mystery of Autism & Pervasive Developmental 
        Disorder" by Karyn Seroussi
    • " Biological Treatments of Autism & PDD" by Dr.Shaw
    • "Dr. Semon's Book, Dr. Crook's explaining yeast problems, etc. if 
       available

Communication  

  • Make sure you have everyone in attendance fill out attendance provide their information.  Include the following
    • Name, address, city, state, ZIP, phone number, Email address
    • Optional information:  school district, childs age
  • Start a YAHOO GROUPS that has an autism focus just for your community.  Go to http://groups.yahoo.com/ for more information and directions. 
  • Communicate via email or a phone tree so not all the communication is done by ONE person calling EACH member.  TACA has a bi-monthly newsletter that is emailed to over 300 members (as of April 2002.)  

Privacy

  • Make sure you understand what parents want to have referrals and which parents want to remain private.
  • Never share your group mailing list with anyone with business intentions.  Watch what you endorse.
  • Respect your members privacy and set rules for contacting each other.  We start first with email and then if parents want to set up meetings offline – that is great!  

Taking the Next Step  

  • Create an identity:  come up with a name for the group. 
  • Contact your local congressman/senator for support & help them understand issues for families affected by autism
  • Buying products or services as a group for bulk discounts
  • Fundraising for autism research or services in the community
  • Community awareness:  meet a reporter, get a story done.
  • Contact your local early start or Regional center to help new parents with newly diagnosed children.
  • Contact your local university to get them involved in autism research. 
  • Learn about all the players in research and services in your community as resources for your group.

How To Post Information

Send information about your support group to judy@gfcfdiet.com

1.  Date (example: 2nd Saturday of every month)
2.  Time (ex: 7:00 p.m. to 9:00 p.m.)
3.  Location Address
4.  Name of Group (if appropriate)
5.  Contact Information (name; email address; (phone number/only if you want it published on Community Bulletin Board.)
6.  General Topics may be included
7.  Kids permitted or not (note babysitting provided if applicable)

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